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Ava's Grace

A little girl's journey with cerebral palsy.

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Author: avasgraceblog

A mother of identical twin girls on an advocacy journey

The Journey

On January 23, 2019January 24, 2020 By avasgraceblogLeave a comment

So here we are: On a journey a little bit different than yours, but maybe not, if you are someone reading this blog to find out what your journey might entail. Let me tell you, we have full days and quiet days, days where we don't want to do anything and days where we have …

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Time to Adapt

On January 19, 2019 By avasgraceblogLeave a comment

Our first visit with the neurologist was very informative and over 3 hours long. A few months prior, I saw a news story about a neurologist in the area with cerebral palsy herself. I remember thinking, if we need to, we need to go see her. Who better to guide us and know what our …

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Life after NICU

On January 7, 2019January 11, 2019 By avasgraceblogLeave a comment

We made it home, I will need to get back to filling in more details about the NICU and my small breakdown toward the end of that long and exhausting adventure, but I want to get to present day, but first, we were discharged! We were actually leaving the hospital with our girls. No more …

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Ahh the NICU

On January 1, 2019 By avasgraceblog2 Comments

Nobody thinks about the NICU, nobody gets pregnant and then thinks about what it would be like to give birth and then leave your child in the hospital after you are discharged. It just isn't what you plan or envision... But, it happens. Sometimes the baby is admitted for a few hours and other times …

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We’re Pregnant!

On November 24, 2018January 1, 2019 By avasgraceblogLeave a comment

It's kind of a funny story.... In February 2015, I traveled to Hong Kong for work, was exhausted and lightheaded the whole time I was there and cried like a baby (which I don't do a ton of) while watching St. Vincent on the plane while heading back home. Little did I know this was …

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Featured

Welcome to our journey

On November 21, 2018November 30, 2018 By avasgraceblogLeave a comment

Everyone has their own journey in life. It's amazing how you can be oblivious to someone or something until it touches you. Are some journeys more difficult than others? You might think so, but then it depends on what you consider to be difficult. Life is never truly easy and everybody faces challenges and struggles, …

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  • Welcome to our journey
  • We’re Pregnant!
  • Ahh the NICU
  • Life after NICU
  • Time to Adapt
  • The Journey
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